In The Moment ... July 2, 2019 Show 608 Hour 1
Imagine your doctor says you have a disease so rare that maybe you've never even heard of it. You can't take home a glossy brochure or join a local support group. You feel isolated, frightened, and adrift.
How do you begin to understand your disease and ways to be your own advocate?
Ben Forred is director of clinical research at Sanford Health. He details connecting the rare disease community at a local level.
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