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Registry & summit connect rare disease patients with researchers

Ben Forred is the director of the rare disease registry at Sanford Health.

This interview originally aired on In the Moment on SDPB Radio.

The annual Great Plains Rare Disease Summit is coming up in Sioux Falls. Sanford Health offers the summit and a rare disease registry for patients and researchers. That registry helps move treatments forward, while also reminding patients and families that they aren't alone.

Ben Forred oversees the registry and joins us to talk about research collaboration and connecting patients to clinical trials.

Learn more about the summit.

Jackie is based out of SDPB's Sioux Falls Studio.
Ari Jungemann is a producer of In the Moment, SDPB's daily news and culture broadcast.