Registry & summit connect rare disease patients with researchers
This interview originally aired on In the Moment on SDPB Radio.
The annual Great Plains Rare Disease Summit is coming up in Sioux Falls. Sanford Health offers the summit and a rare disease registry for patients and researchers. That registry helps move treatments forward, while also reminding patients and families that they aren't alone.
Ben Forred oversees the registry and joins us to talk about research collaboration and connecting patients to clinical trials.