A treatment developed at Sanford Research is in clinical trial to help kids with a debilitating genetic condition. The FDA fast-tracked the study in part because the condition progresses quickly and children die.
Six patients are part of the Batten Disease trial. One family from the Midwest has a child treated.
Beth and Bryan live in Minnesota. At four years old, their son Blake struggled with fine motor skills. They incorporated occupational therapy. Then Blake needed speech therapy. Then his gross motor skills deteriorated, and he needed physical therapy.